Elaine Herscher

Every year on December 3 the world observes International Day of Persons with Disabilities. It’s a day proclaimed in 1992 by the United Nations to “promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities.”

Even before its formal founding, the organization that would become LifeLong Medical Care was inextricably linked to the disability rights movement, according to longtime LifeLong Board of Directors member Patricia Carson Sussman.

“Over 60 and the whole disability movement happened at the same time. In a way, they grew up together,” Carson Sussman said.

Over 60 Health Center was the first health center of what is present-day LifeLong. Carson Sussman was an original Over 60 board member, as was Judy Turiel, who is also on the LifeLong board today.

The Over 60 board was chaired by Judy Huemann, who has been described as “the mother of disability rights.” Heumann, who contracted polio at age 5, went on to serve in both the Clinton and Obama administrations. Carson Sussman noted that many advances for disabled people were created in Berkeley by people associated with LifeLong.

“From the beginning,” Carson Sussman said, “LifeLong has been aware of and knowledgeable about disability rights.”

 Today that strong awareness continues. LifeLong’s Care at Home program serves seniors who aren’t able to leave home for care because of either physical or behavioral health disabilities. LifeLong has also worked closely with the Disability Rights Education & Defense Fund (DREDF) to best determine how to ask patients about their accessibility needs so they can be better served when they seek health care.

By Judith Graham | Kaiser Health News

Millions of older adults are having trouble making ends meet, especially during these inflationary times. Yet many don’t realize help is available, and some notable programs that offer financial assistance are underused.

A few examples: Nearly 14 million adults age 60 or older qualify for aid from the federal Supplemental Nutrition Assistance Program (also known as food stamps) but haven’t signed up, according to recent estimates. Also, more than 3 million adults 65 or older are eligible but not enrolled in Medicare Savings Programs, which pay for Medicare premiums and cost sharing. And 30% to 45% of seniors may be missing out on help from the Medicare Part D Low-Income Subsidy program, which covers plan premiums and cost sharing and lowers the cost of prescription drugs.

“Tens of billions of dollars of benefits are going unused every year” because seniors don’t know about them, find applications too difficult to complete, or feel conflicted about asking for help, said Josh Hodges, chief customer officer at the National Council on Aging, an advocacy group for older Americans that runs the National Center for Benefits Outreach and Enrollment.

Many programs target seniors with extremely low incomes and minimal assets. But that isn’t always the case: Programs funded by the Older Americans Act, such as home-delivered meals and legal assistance for seniors facing home foreclosures or eviction, don’t require a means test, although people with low incomes are often prioritized. And some local programs, such as property tax breaks for homeowners, are available to anyone 65 or older.

Even a few hundred dollars in assistance monthly can make a world of difference to older adults living on limited incomes that make it difficult to afford basics such as food, housing, transportation, and health care. But people often don’t know how to find out about benefits and whether they qualify. And older adults are often reluctant to seek help, especially if they’ve never done so before.

“You’ve earned these benefits,” Hodges said, and seniors should think of them “like their Medicare, like their Social Security.”

Here’s how to get started and some information about a few programs.

Getting help. In every community, Area Agencies on Aging, organizations devoted to aiding seniors, perform benefits assessments or can refer you to other organizations that conduct these evaluations. (To get contact information for your local Area Agency on Aging, use the Eldercare Locator, a service of the federal Administration on Aging, or call 800-677-1116 on weekdays during business hours.)

Assessments identify which federal, state, and local programs can assist with various needs — food, housing, transportation, health care, utility costs, and other essential items. Often, staffers at the agency will help seniors fill out application forms and gather necessary documentation.

A common mistake is waiting until a crisis hits and there’s no food in the refrigerator or the power company is about to turn off the electricity.

“It’s a much better idea to be prepared,” said Sandy Markwood, chief executive officer of USAging, a national organization that represents Area Agencies on Aging. “Come in, sit down with somebody, and put all your options on the table.”

Older adults who are comfortable online and want to do their own research can use BenefitsCheckUp, a service operated by the National Council on Aging, at benefitscheckup.org. Those who prefer using the phone can call 800-794-6559.

Aid with food expenses. Some aging organizations are adapting to heightened demand for help from seniors by focusing attention on core benefits such as food stamps, which have become even more important as food inflation runs around 10%.

The potential to help seniors with these expenses is enormous. In a new series of reports, the AARP Public Policy Institute estimates that 71% of adults age 60 and above who qualify for the Supplemental Nutrition Assistance Program haven’t signed up for benefits.

In some cases, older adults may think benefits are too small to be worth the hassle. But seniors who lived alone received an average of $104 in food stamps per month in 2019. And at least 3 million adults 50 and above with very low incomes would receive more than $200 a month, AARP estimates.

To combat the stigma that some older adults attach to food stamps, AARP has launched a marketing campaign in Atlanta and Houston explaining that “food prices are rising and we’re all trying to stretch our grocery budgets,” said Nicole Heckman, vice president of benefit access programs at the AARP Foundation.

If the effort alters seniors’ perception of the program and increases enrollment, AARP plans to do a major expansion next year, she said.

Aid with health care expenses. AARP is also working closely with community organizations in South Carolina, Alabama, and Mississippi that help older adults apply for Medicare Savings Programs and low-income subsidies for Part D prescription drug plans. It plans to expand this program next year to as many as 22 states.

The value of these health care benefits, targeted at low-income seniors, is substantial. At a minimum, Medicare Savings Programs will cover the cost of Medicare’s Part B premiums: $170 a month, or $2,040 annually, for most seniors. For older adults with the lowest incomes, benefits are even broader, with cost sharing for medical services also covered.

“Even if you think you might not qualify, you should apply because there are different rules across states,” said Meredith Freed, a senior policy analyst for KFF’s Program on Medicare Policy.

Low-income subsidies for Part D prescription drug plans, also known as Extra Help, are worth $5,100 annually, according to the Social Security Administration. Currently, some seniors get only partial benefits, but that will change in 2024, when all older adults with incomes below 150% of the federal poverty level ($20,385 for a single person in 2022) will qualify for full Extra Help benefits.

Because these health care programs are complicated, getting help with your application is a good idea. Freed suggested that people start by contacting the State Health Insurance Assistance Program in their state (contact information can be found here). Other potential sources of help are the Medicare hotline (800-633-4227) and your state’s department of aging, which can direct you to community organizations that help with applications. A list of the state departments can be found here.

Other kinds of assistance. Be sure to check out property tax relief programs for seniors in your area as part of a broader “benefits checkup” process.

Older adults with low incomes also can get assistance with high energy bills through the Low Income Home Energy Assistance Program. Your local utility company may also provide emergency relief to seniors who can’t pay their bills. It’s worth making a call to find out, advised Rebecca Lerfelt, the retired assistant director of a Chicago-area Aging and Disability Resource Center. These resource centers help people seeking access to long-term care services and are another potential source of assistance for older adults. You can find one in your area here.

For veterans, “this may be the time to take a look at using your VA benefits,” said Diane Slezak, president of AgeOptions, an Area Agency on Aging in suburban Cook County, Illinois. “I run into a lot of people who are eligible for veterans benefits but not taking advantage of them.”

Barriers to getting help. Advocates for many programs note that agencies serving older adults are facing staff shortages, which are complicating the efforts to provide assistance. Low pay is a commonly cited reason. For example, 41% of Area Agencies on Aging report staff vacancies of up to 15%, while an additional 18% report vacancies up to 25%, according to Markwood. Also, agencies have lost significant numbers of volunteers during the covid-19 pandemic.

At the same time, demand for help has risen, and clients’ needs have become more complex because of the pandemic and growing inflation.

“All of this is being amplified by the financial strains older adults are feeling,” Markwood said.

The original story from Kaiser Health News appeared here.

Pridefest Oakland 2022 is making MPX vaccines available during its yearly LGBTQ celebration on Sunday September 11.

Alameda County Health Care Services Agency is encouraging vaccines for gay and bisexual men, men who have sex with men or transgender people, and sex workers. The agency is making 1,200 doses of vaccine against MPX (monkeypox) on a first-come, first-served basis.

Hours are 11am-6pm or until supplies last. The vaccine clinic is at 1970 Franklin St., Oakland in the Union Bank parking lot. Entrance to Pridefest is at 20^th & Broadway.

For more information on eligibility, other vaccine opportunities, or further questions, please see the Public Health Department’s site at mpx.acgov.org/vaccine.

LifeLong practitioners Corey Bohman, NP, and Tim Nguyen, PA, are featured presenters on Friday September 9 at an interactive presentation on monkeypox management for practitioners. The talk, which runs from noon to 1 p.m. via Zoom, is titled Monkeypox Management: A Patient-Centered Approach.

The learning objectives for practitioners include:

• Describe the local epidemiology and clinical manifestations of monkeypox
• Identify approaches to evaluating and discussing monkeypox with their patients
• Address barriers to health-seeking behaviors using patient-centered techniques

The course, presented by Pacific AIDS Education and Training Center of UCSF, meets the qualifications for some continuing education credits.

To register, click here.